MY ARTICLE

I wrote this article 2 years ago ….. It gives people an insight into what it is like to live with Alopecia Universalis on a  daily basis.  How it can turn your life upside down in an instant.  It is an Autoimmune Disease which is so visible that it changes you as a person, how you see yourself, how you feel about yourself, how others see you and how society views bald people.    There are many hurdles to overcome when your life is faced with Autoimmune Alopecia.  It is not easy…. and you have to change your attitude to be able to live with it comfortably.  I wrote this article when I felt acceptance was at the top of my list…… now I just want it fixed.  I can live with Alopecia Universalis in my life, at the moment I, and others who suffer it, have no other choice…. but I will never accept this disease until I know it has been researched significantly.

29 yr old Female, Attractive, 5’8”, Enjoys Swimming, Running, Horse
Riding,
Outgoing Personality, GSOH, NBM, BALD,
WLTM
Genuine Guy.

You will have to come back to me now, you are bald, no other man will want you!” – Apparently said facetiously.

An ex-lover’s words spoken with such deliberate and almost smug belief, words now etched in my brain with catastrophic psychological
consequences for the questioning, analytical mind of a Gemini. A statement made so flippantly by a supposed loved one that had the
presence and strength in concept to haunt an independent, confident,  single female in her late 20s for almost 8 years.

Was he right?  Is this condition known as Alopecia Universalis affecting my relationships with men?

We live in a society obsessed by looks. Never has there been an era where more attention has been focused on beautiful women; diets,
celebrities, fashion and we all strive to be a small part of this in our everyday lives.  Whether we watch it on TV, read about it in magazines, live it on the weekends or visit the gym daily in order to get the perfect body.  We all want to like what we see in the mirror.  If we look good this gives us confidence and if we have confidence and look good we attract attention from the opposite sex.  This is what it is all about; we are creatures of our planet all participating in our reason for existence, to find a partner and pro
create.

Whilst losing my hair at the age of 21 I didn’t dramatise it too much. It was seen as a temporary ¨Blip¨ in my body’s system.  Like a cold sore, it looks awful, a sign that the body is run down but in time it will heal and disappear. The thought of losing all of my hair on my head never crossed my mind.  The bald patches were treated as a bit of a joke. I took great pleasure in drawing attention to them on nights out. Perfect circular bald patches were left on my scalp, ranging in size from a 20p to a 50p coin, most of them would grow back only for another patch to fall out, how odd!  It was an interesting topic of conversation, one that duly took its place in weekend pub banter.  6 Months later and after some research the
depressing reality set in.  This condition was suddenly not so quirky. Not only had I lost the hair on my head, I had lost my eyelashes, my eyebrows, and all the hair on my body. I was unrecognisable. Alopecia Universalis had brutally attacked my body, robbed me of my physical identity and left my confidence and self esteem deeply scarred. I went from being content with the way I looked to being repulsed by my reflection in the mirror.  An expressionless alien creature stared back at me.  The only feminine part left were my breasts and now even they didn’t seem to fit my body.  I wanted to hide from the world.  Any potential relationships with the opposite sex were now officially null and void.

Coming from a scientific background it was incomprehensible for me that there was no simple cure for Alopecia Universalis.  Surely for the body to suddenly stop growing hair “something” is missing, find that “missing something” and the hair will grow again? This concept became my reason for living.  My GP referred me to dermatologists and tricologists, I was checked for thyroid disorders, vitamin and mineral deficiencies, had my hormone levels screened but ironically to my disappointment nothing was detected as abnormal.  After having steroids injected into my scalp on a regular basis with no dramatic results I had exhausted all western medicine treatments. Frustrated and unconvinced, I put my career path on hold, dropped out of my Physiotherapy degree course in Scotland and moved to Ireland to track down faith healers who had reputations for curing Alopecia Universalis. Potions, lotions, witchcraft, universal energies, drinking water from Knock, frequenting herbalists, homeopaths and Chinese acupuncturists, I would have given my left kidney for my hair to grow back.  Thousands of people suffer this condition and no
legitimate cure has been found. The first ever celebrity to be diagnosed with 
Alopecia Universalis, was Gail Porter.  Gail publicised the disorder 5 years after I was diagnosed. She still has Alopecia Universalis.  The hair may spontaneously grow back periodically and may fall out again, or it may remain for years but there is no reasoning and no certainty.  To base all your hopes on this can prove unproductive in accepting the condition inturn preventing you from learning how to positively live with Alopecia Universalis.

I am 29 years old, I am single and since developing Alopecia Universalis 8 years ago I have had three failed relationships.  I don’t believe any of these relationships ended directly because of the Alopecia but the condition is not as insignificant from an outside perspective as one might first think.  Do not underestimate the power of hair, not just in superficial vanity but how the impact of losing hair can affect a female on a deeper, psychological level. I know it is only hair, I have the intelligence to rationalise the problem and put it in a perspective box; I have not lost my legs and unable to walk, I am not terminally ill with cancer, this condition is not life threatening, I am a fit and healthy young woman. So why do I let this condition significantly affect the way in which I live my life and the relationships that I choose to have? I wonder is it to do with the society we live in?

In normal everyday life it is not a frequent sight to see a young woman, completely bald walking down the street. Alopecia Universalis is an embarrassing condition, a taboo subject. Men go bald, women don’t go bald. Being bald makes me feel ugly, unsexy, and vulnerable to judging comments. I’m not prepared to step out of my house everyday and be gawped at or whispered about or to see children point and hear them innocently ask, “mummy why does that lady have no hair?”  We all want to feel accepted by the society we live in. Who wanted to be that kid at school who didn’t ‘fit’ in? The kid that was a little different who no one wanted to play with in the playground? Conforming to rules and etiquette and blending in is something our society nurtures in to us with positive reinforcement. If you are ’normal’ at school and you look good you are rewarded by being popular by the other kids. Thankfully as we mature we begin to form our own opinions of individuals around us. Unfortunately we will always have this inbuilt knee jerk reaction of having a good old stare when we recognise something out of the ordinary. Had I at the age of 22 years old wanted to be different and stand out from the crowd I could have covered my body from head to toe in tattoos or dyed my hair bright pink or dressed like a Goth and had piercings all over my face.  But I didn’t choose to be bald and I can’t change our society’s responses to seeing something a bit different. I don’t want to stick two fingers up to society and Alopecia Universalis and walk about supposedly proud to be bald and ultimately be that unhappy child in the playground.  I don’t want to feel vulnerable and freakish, people tapping on the goldfish bowl. I want to ‘fit in’. So every day I draw on my eyebrows and eyeliner, stick on my false eyelashes and wear a wig just so I can look like everyone else.

Growing up I was never aware of my attractiveness, I was a country girl brought up in jeans and T-shirt trying to keep up with my older brother, my mother had to bribe me to wear dresses.  Personality, having fun, playing sports and messing around with ponies always came before how I looked.  Even at university dressing up was for special occasions, however attracting male attention came easy, wear a smile, laugh a lot, have a care free attitude and people soon wanted to be in your company.  I didn’t have a care in the world.  Had Alopecia always been part of my life I
possibly could have accepted it easier. I would never have had a comparison of having my own hair and eyebrows and eyelashes. It is
all the little things that I used to take for granted which I miss the most.  I can no longer leave the house in a hurry, for example when i’m late for work or if i have to quickly nip out to get milk, everything now has to be pre-meditated and planned.  Getting caught in the rain doesn’t just have the obvious inconvenience of getting wet and ruining your hairstyle, i have the added concern of my eyebrows running down my face.  Silly things like being on holiday, lying next to a pool and not being able to spontaneously jump in.  Meeting new people and worrying if they can tell that I am wearing a wig, and that my eyelashes are still in position.  Playing team sports, and not having to wonder whether my wig will accidently slip
off and reveal my bald head to an unsuspecting shocked audience. Even going to a spa for a neck and shoulder massage I can’t relax because I dont want to tell the masseuse from the start that im wearing a wig.  Riding on the back of my mates motorcycle only to realise I have to confront the dilemma of how to get the helmet off whilst keeping the hair on. The list could just go on and on. People think I put my wig on and the Alopecia disappears, it couldn’t be further from the truth.  I end up having to explain my personal condition to a stranger because a situation has dictated it, or I’m conscious talking with a new person incase they can tell i’m wearing a wig, or wondering whether it will come off if its windy! Any person who tells me that I should just not care what people think and insinuates I tear my wig off in public whenever needs be just doesn’t
understand Alopecia Universalis. Being that spontaneous and care free person that I used to be is impossible, if I can’t feel comfortable
with this condition, how on earth can I expect a man to?

Although Alopecia has changed my looks forever I am still the same person inside, hair or no hair.  Dealing with this condition has made me a
more understanding and emphatic person, I can see when someone is hurting and can help. I love a laugh and enjoy making people laugh, I still love meeting new people. When I put my wig on and do my make up I can still attract male attention, but in the forefront of my mind I wonder am I portraying a lie? Wearing a wig is a pretence of living my life without this condition.
  If you think about it I am the perfect example of false advertising.  First impressions are imperative and lasting in our society. Couples are initially attracted to what they find pleasing to the eye.  I am therefore “not what it says on the tin.”  Strip me down to the bare naked truth and this is not what I look like at all. So when do i shatter a potential boyfriend’s illusion that he is dating a natural brunette beauty? 

The thought of having to bring up the biggest personal flaw of my life, one which I hide from the rest of the world, with a guy whom I’ve barely known for two minutes standing at a bar is just hideous. What person who has an embarrassing condition even wants to tell a partner of say two months about it? Only until a certain level of trust has been formed between two people can you feel comfortable enough to share such meaningful, personal information. But Alopecia Universalis cannot be hidden for long because of its visual, skin-deep presence. Depending on his attention to detail, if need be, I could possibly hide it up until the first kiss, when there is a chance he could put his hand up to the back of my head and feel that it is a wig. Personally I would rather be upfront and honest from the onset saving any embarrassment of them figuring it out before I had plucked up the courage to tell them. If a man is so shallow that he can’t see past looks for who I actually am then surely he is not worth the price of my last cut and blow dry?

During my 20s I have watched friends relationships blossom, singles love dilemmas unfold, I have witnessed friends settling down, get married,
start a family and I wonder can a young woman with no hair have a normal relationship with a man?  In hindsight none of my boyfriends
have ever seemed woried about me being bald on the contrary, a hairless woman can be quite appealing to a man.  So what is the
problem? The more I analyse past relationships it begins to surface that perhaps it is my insecurities with myself, my thoughts and perspectives on certain situations which unknowingly create barriers within a relationship. I hate what I see when I look in the mirror, I don’t feel sexy when I have no hair on, wearing sexy lingerie doesn’t have the same appeal on a bald woman.  I worry that my hair will accidentally get caught during sex and it will come off in the moment. Immediately when I wake up I have to dive into the bathroom to repaint my eyebrows that I rubbed off in the night.  Maybe he isn’t thinking these thoughts, maybe he doesn’t see these insecurities as dramatically as I do? Maybe he doesn’t care?  But ultimately if I cant accept me and be content with me then how can I expect him to?  I was never one of those women who spent hours in the
morning on their hair and make up before they could set foot outside the house. A glamorous, high maintenance girl who if to be stuck on a
desert island the three most important things she must have would be her, mascara, concealer and ghd irons. In some bizarre twist I can’t
help thinking Alopecia Universalis has turned me into that vain person who I never wanted to be.  Everything focused on me and my problem, trying to emulate what I once looked like instead of accepting and working with what I have now. In hindsight I have possibly let Alopecia overshadow other important issues within a relationship which in turn end up being neglected to the detriment of the partnership. I have to learn that life is not all about me and my Alopecia.

I have lots of unanswered questions because I haven’t found my Mr Right, maybe I have to tweak the way I see myself. Maybe I have to not think too much, maybe I need to speak up about my condition more freely and not keep it as this whispering secret. I don’t have the answers but I do have a plan for the future. I am going to embrace my 30s, be open with my alopecia, wear a smile, laugh a lot, have a carefree attitude and who knows someone might just want to date a bald girl 😉

Jayne Waddell xx

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23 thoughts on “MY ARTICLE

  1. I have just read all this jayne and its so sad to read 😦 i cant believe even people who havent suffered from this would think that it would be easy. The easy thing to do is always put urself in someone elses shoes and try to think how you would feel and that should help people get a little idea. I really hope that one day things work out for you jayne and ur happiness comes back cause ur fight for survival is amazing 🙂 xxx

  2. I am 17 years old, still studying for my a-levels and living with alopecia. It’s crap. I try to be positive and grateful that I don’t suffer from anything worse but the complete isolation and loneliness I experience because of this unfair disease is unbearable at times, despite the fact that I am funny, outgoing and a friendly, caring person – what have I done to deserve this?! I’ve told two friends at school about it but don’t talk about it because quite honestly they don’t understand how it makes me feel. Going to the doctors on a weekly basis for steroid injections is not what someone of my age or any age should have to deal with. I hate having to go to the bathroom to simply tie my hair up, not being able to do it in lessons because I’m so afraid someone will notice the patches on my head and make a comment to someone else.
    It hinders what I do and sometimes how I socialise. I am a swimmer and runner but I sometimes find that because of this stupid disease I can’t perform as well as I should be simply because I worry about the visibility of the patches on my head.
    What’s more is that I since the development of it (third time now) I find it difficult to even attempt at any relationship with a guy. The whole time I am thinking “what if someone notices and then everyone finds out?” Or “he’s never going to like me if he knew what was wrong with me” whatever people say, this is crap. Complete bollocks. If someone says “oh it could be so much worse” I find it hard to not cry because how the hell do they know? If they have ALL their hair still how could they possibly know what this is like?!
    I don’t know anyone personally who has to deal with this but those of you who do will understand how I feel. Yes, I want to get on with things and the majority of the time I do but one time I would like to trade places with someone and see how they can cope with it. Because I’m really struggling at the moment.

    • Oh dear Molly,

      I just read this now. Please email me and we can arrange to chat over the phone. I know many people around the UK who suffer alopecia and there may be someone nearby you who can help. Yes it is awful, you must remain strong. It is awful that we do not know what is causing it and so we are hopeless in being able to do something about it. Please try to stay positive Molly and email me at jwads2000@yahoo.com for a chat anytime

      Jayne xxx

    • Dear Molly,
      It looks as though I did not respond to your message and for that I am so sorry! I agreee with you 100% Molly. I also like how you say i how it is… no airs and graces, because this is the truth. Also you should never be made to feel that this autoimmune disease is not worthy because of the fact “things could be a lot worse”. Our bodies are attacking healthy tissue cells and that means something is going very wrong in the body. Autoimmune disease should be taken seriously, just like Rheumatoid Arthritis, Diabetes, Celiac Disease , MS etc….. the are all doing the same thing… ataacking healthy tissue cells. I am so sorry to hear of your alopecia and I feel your pain, every ounce of it. that is why we need to set up the charity. You are not alone and if you ever need someone to talk to I am on the other end of a telephone call.

      All my love

      Jayne x

  3. I had to write to thank you for this article. I am a single mother living in the USA whose original diagnosis of LPP seems to be changing into alopecia totalis. Every day for the past four years that I have been unfortunate to deal with this has been a challenge for me on many levels. I stay away from activities for fear that my hairpiece will move to much and I will be “discovered”. This condition is time consuming as well as financially and emotionally devastating to me. Any ego I may have had is totally gone, and I live in fear that I will be an embarassment to my children as they get older. I have had the unfortunate experience of dating men who couldn’t tolerate my lack of hair. For the past year or so, I have avoided social functions and people altogether…and don’t even get me started about the amount of time it takes me to get ready to go anywhere!
    Anyway, thanks for making me feel like there is someone else out there feeling the way I do!

    • HI Robyn, Thank you for your message…. It makes me feel good that I can help some people with the words I write. Even if it is just letting them know that they are not the only person that feels how they feel when living with Autoimmune Alopecia. It is not easy, It is challenging and unless anyone has gone through it then they do not/ cannot understand. Your children will never be embarrassed of their mummy, be proud of who you are, it is nothing to be ashamed of and your children will be proud of how strong their mum is. I have had to alter my life to fit around alopecia because there are just some things I wont do eg beach holidays abroad, the gym things I just dont feel comfortable doing. Find the things you DO feel cofortable doing and focus on them 🙂 Keep the faith . Jayne xxx

  4. I wanted to drop a note to say how brave the people who have posted are, and my heart goes out to every one of you. I also carry this as well, as I had lost all of my hair nearly 8 years ago, just after completing graduate school. As a man with this, despite the cultural acceptance of male baldness, it still has been a struggle to regain that sense of self that is lost, to miss the feeling of a summer breeze or that special woman running her fingers through my hair. Most difficult for me when it first happened was learning to recognize that face in the morning mirror when I was getting ready for work, before that first cup of coffee fully switched on the brain. Don’t let yourself be defined by this condition, celebrate your uniqueness and always know that there are others who are dealing with this too, that you aren’t alone.

    • Hi David,

      What a lovely message! Yes we try not to let it define us but as you well know this conditon does take part of you as time goes by. It is not easy. It has been a conditon which has been kept hidden for far too long. We need to be heard for research purposes. Where are you based David?

      Jayne

      • I understand exactly. Here in the US, there appears to be little awareness of this condition as well, particularly in relation to its emotional impacts. I just wanted to drop a note of support to others because reading a number of the posts, I remembered when I was coming to grips with it and how alone I felt.

      • So true, and so nice to hear. There certainly are a few emotional ups and downs with this condition. Lets hope we can raise more awareness in the very near future and it is merited as an autoimmune disease alongside the rest of them x

  5. I am a Male living in Minnesota and am currently in the final stages of my Alopecia Universalis. The only hair left anywhere on my body is a few good sized patched on my legs. I know they will fall out in due time. I am also a High School Mathematics Teacher, and at first was embarrassed at what my students might think, after going from a magnificent beard and full head of hair to completely bald within the span of 2 months left me a bit jarred. However, I believe that I’ve come out of the experience as a better person – and am proud of the way I look.

    After spending the better part of two months worrying over whether or not I would keep my eyebrows, my eyelashes, or my chest hair, I eventually learned to stop worrying. Alopecia forced me to change my attitude, and see the benefits in not becoming attached to things that are, by nature, impermanent. I have now taken up Buddhism, and have noticed a wonderful feeling of peace within myself about the nature of the world. I am happier, have more self-esteem, and am in better shape. In general, Alopecia has helped me come to the realization that the only thing I can control in the world is my attitude, and reactions to the things that happen around me.

    I am thankful, and proud to wear it as a stamp, if only for that reason.

    • Hey! that is a lovely story! I agree with you it certainly makes you appreciate certain things in life and more and makes you more aware of yoursefl and others. Gives you a certain depth that is for sure! Thank you fro reading the blog 🙂 x

    • Hey! that is a lovely story! I agree with you it certainly makes you appreciate certain things in life and more and makes you more aware of yoursefl and others. Gives you a certain depth that is for sure! Thank you fro reading the blog 🙂 x

  6. Jayne,
    I’m 58 years old and suffered from alopecia areata where I lost 30% of my head hair and patches of body hair around 14 years ago.

    It came and went for about 8 years, sometimes almost completely clearing up and then another cycle of hair loss.
    In hindsight I’ve had it since my teens, although prior to 1999, the bald patches were probably less than 10mm and rarely happened, I didn’t think of it as alopecia. What makes me realise now that it was alopecia is that I would have small areas of white hair when it grew back, and these white hairs would eventually return to normal.
    In the bad years from 1999 to 2006 the bald patches seeme to be the worst in late winter/early spring. I thought that maybe low levels of vitamin D could be a factor.
    So I started supplementing and did a lot of research. I now keep my levels around 75 ng/ml and have maintained this since 2006, with testing every 6 months or so.
    Unfortunately I didn’t test prior to supplementing so I don’t know how low my levels were at the start.
    I also came to the conclusion that I was probably gluten/gliadin intolerant, and I had just started taking an interest in the paleo type of diet. So over 2006/7 I developed a diet regime that meant I eliminated all grains, looked to anti inflammatory spices such as turmeric, ginger, black pepper and chillies. I also included tomatoe pureé and vegetables such as broccoli, spinach, cauliflower, brussel sprouts and spring cabbage. I mainly used extra virgin olive oil as my source of fat. I changed to using grass fed pastured butter (Kerrygold) as my main source with EVOO as my secondary source. I’m convinced that a high fat low carb anti inflammatory diet is the way to go to combat auto immune diseases. Probably http://www.archevore.com summarises where I am right now.

    Well the good news is that after 3 or 4 years, my alopecia areata cleared up. So for more than 2 years I have not had a recurrence. I believe that stress triggers the underlying autoimmune condition in most cases. I am a full time carer for my chronically ill wife who has been suffering from COPD for more than 7 years. You can’t get more stressful than that, yet (touch wood) the alopecia has abated.

    Only time will tell, but I honestly think I’ve cured the alopecia. I genuinely believe that following my guidelines, your hair would grow back. It might take 5 years or more but it will repair.

    Best wishes, Bill.

    • Dear Bill that is really interesting, thank you so much for your help! I 100% agree with your statement on low carb , high PUFA and protien for autoimmune diseases. I really just wish we had the research on our own population on this. I supplement vitamin D everyday 8000iu, I must look back on my notes and see what my levels are like!

      Please do keep intouch I would love to pick your brains sometime Bill 🙂

      drop me an email at

      jayne@aar-uk.org

      All the best

      Jayne x

  7. Hi Jayne,
    When I was 31 and pregnant with my daughter, 9 years ago, I came out of the hairdressers, bent down to hug my son and my husband noticed a patch of baldness the size of a 50 pence on the top of my head. I felt worried but put it down to the pregnancy.
    Ever since then patches of baldness have come and gone, varying in size and number but always growing back. I felt lucky because my hair was thick so the patches were always easily hidden.
    I have always had eczema and a couple of years ago my doctor discovered my underactive thyroid; both I have read make someone more susceptible to Alopecia.
    I am now 40 and during the past few weeks my hair has suddenly fallen out, almost completely. I have just a few eyebrow hairs left, and my eyelashes are now small clusters and dwindling. I shaved my legs and under my arms a couple of weeks ago and no sign of stubble (every cloud has a silver lining!).
    The first doctor I saw just looked at me and shrugged saying there was nothing they could do. It was the shortest doctors appointment I have ever had. I have since gone back to see another and demanded to see a specialist. My appointment is in a few weeks but the more I read about Alopecia Universalis the more my hope fades.
    I have been left devastated; I feel embarrassed, ugly, a freak. I hate my husband seeing me first thing in the morning and wonder if I repulse him, even though he constantly reassures me and is so sweet and supportive. I feel guilty and vain for being so preoccupied with loosing my hair but at the same time I feel quite angry when people trivialise Alopecia. Quite a few people have said to me ‘at least you don’t have cancer’. Would anyone say this if I lost a finger or a toe, or had a large visible scar?
    Jayne, stumbling across your site yesterday has made me feel for the first time that I’m not so alone. Just reading other people’s stories and writing this has been therapeutic for me. What you’re doing is amazing and inspiring, and I hope given a bit of time I will feel strong enough to get involved and do something positive too.
    Thank you.
    Joella x

    • Dear Joella,

      Thank you so much for your very kind words. I am so sorry to hear that you have nearly lost all of your hair. This condition is just hideous. please do not feel embarrassed or ashamed, this is medical condition just like Rheumatoid Arthritis or MS ro vitiligo, the symptom difference is hairloss. We are pushing for research, we have set up a scientific advisory and now need to start raising funds to pay for the project. i would love to see you get involved. Please stay strong Joella.

      Have a look at the charity website http://www.aar-uk.org and you can “sign uo” for research and latest news.

      I hope you keep in touch and let me know how you are

      All the best and much love

      Keep your chin up babe

      Jayne xxx

  8. Hi Jayne,

    I came across your blog today and it made interesting reading, I have been walking the path to AU for three and a half years now. It can certainly get tiresome explaining to people that terminal illness is not a factor in the “chemo chique” look, but in good health and have saved a small fortune on razor blades and hair cuts.

    Thanks for your blog, and all the best,

    John

  9. Wow! I have alopecia and thats exactly how i feel. Thats unreal. Thats EXACTLY how i think. Im 25, ive had alopecia since 21. Its changed me as a person completely. I constantly worry im never gona get married or have children. I worry about my wig falling off at a amusement park.

  10. Hello,

    My daughter is 9 and is rapidly progressing to universalis. She had an emotional breakdown last night because she is convinced that everything you’ve written here will happen to her — and I can’t honestly tell her it won’t.

    Thank you for sharing. I understand. I feel for you. I don’t think you’re nuts for feeling the way you do. Many people tell my daughter she’s lucky not to have cancer, but it just doesn’t make her feel any better because, guess what, I did have cancer hair loss and it grew back in six months and she remembers that. Hers will not grow back, most likely.

  11. I have a little sister well now she is 20. But at the age of 3 she started to lose her hair. She to has alopecia.
    We live in Canada and there is nothing out here that we found to help her. We have a hard time finding wiggs that fit her little head right. I think at this stage in her life she is having the trouble with the guys. She is FAS and ADD with alopecia but it does not stop her wanting to build her future. She has no girl friends her age and i see her pain. I dont know what to do to help her or get her self esteem up there.
    Dani is a strong young women that fight every day but we dont got any resources out here for her that we can find.
    I am proud that i have her in my life but i just dont know how to help her.
    She has showed me so much as a guy i can tell u looks do not matter its what s on the inside of the person. But a female in that situation probably dont see that.
    I am not a good writer but women with alopecia, u are beautiful so keep ur head up

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